
11th-12th October 2021
Elements and advances in sickle cell care is a 2-day virtual conference, suitable for healthcare professionals and students, people who have sickle cell and their families, and support/peer organisations.
This conference features globally renowned speakers who specialise in sickle cell care and experts who are leading advances in treatments.
The conference costs £20 to attend and all sessions will be recorded and available to watch after the conference.
Speakers

Professor Eugene Oteng-Ntim
Consultant Obstetrician, specialist in maternity care for women with sickle cell.

Mrs Nkechi Anyanwu
Service lead- Sickle Cell & Thalassaemia Team

Professor Josu De La Fuente
Consultant Paediatric Consultant, bone marrow transplant specialist

Mr Tarek El-Toukhy
Consultant in reproductive medicine and pre-implantation genetic diagnosis

Professor Jo Howard
Consultant Haematologist, sickle cell lead

Professor Baba Inusa
Lead consultant for paediatric haemoglobinopathies
John James OBE
Sickle Cell Society CEO

Patient and Public Involvement (PPI) member Jeannine Joseph
Sickle cell patient & representative for research

Dr Rachel Kesse-Adu
Consultant Haematologist, sickle cell specialist

Dr Julia Kopeika
Consultant gynaecologist, subspecialist in reproductive medicine and surgery

Professor Dame Elizabeth Nneka Anionwu
1st ever UK Sickle Cell & Thalassaemia Nurse & author of numerous titles, including her memoir ' Dreams from my Mother'.

Specialist Nurse Kelly Nwankiti
Lead Nurse for Patient Blood Management

Dr Nita Prasannan
Consultant Haematologist - special interest in sickle cell care in pregnancy

Research Leads for TAPS2 – Hilary Thompson (RN/RM) & Vicky Robinson (RM)

Dr Panicos Shangaris
Clinical lecturer, subspecialising in Maternal & Fetal Medicine

Olushola Shoyemi
Advanced Nurse Practitioner in sickle cell care

The Sickle Cell Society
Team lead Midwife Jackie Rice & specialist Midwife Aisling Fisher – Tower Team
Abbie Wickham
Highly Specialist Clinical Psychologist
Topics
- What is sickle cell and overview of care
- Medication and pain management
- Psychological care for people with sickle cell
- Sickle care nursing
- Blood transfusions and safety
- Stem cell transplants
- Patient experience
- Support organisations for Sickle Cell
- Interview with Professor Dame Elizabeth Anionwu- the 1st UK sickle cell Nurse
- Fertility in sickle cell and fertility preservation
- Prenatal pre-implantation diagnosis
- Antenatal haemoglobinopathy screening
- Gene therapy
- The ‘joint sickle cell antenatal clinic’ system
- Caseload midwifery for women with sickle
- Obstetric care for women with sickle
- Neonatal and Paediatric sickle cell care
- Current and potential future sickle cell research projects