Elements and advances in Sickle Cell Care

A 2-day virtual conference

11th-12th October 2021

Elements and advances in sickle cell care is a 2-day virtual conference, suitable for healthcare professionals and students, people who have sickle cell and their families, and support/peer organisations.

This conference features globally renowned speakers who specialise in sickle cell care and experts who are leading advances in treatments.

The conference costs £20 to attend and all sessions will be recorded and available to watch after the conference.

Speakers

Professor Kypros Nicolaides

Pioneer in Fetal Medicine

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Professor Eugene Oteng-Ntim

Consultant Obstetrician, specialist in maternity care for women with sickle cell.

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Mrs Nkechi Anyanwu

Service lead- Sickle Cell & Thalassaemia Team

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Professor Josu De La Fuente

Consultant Paediatric Consultant, bone marrow transplant specialist

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Mr Tarek El-Toukhy

Consultant in reproductive medicine and pre-implantation genetic diagnosis

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Professor Jo Howard

Consultant Haematologist, sickle cell lead

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Professor Baba Inusa

Lead consultant for paediatric haemoglobinopathies

John James OBE

Sickle Cell Society CEO

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Patient and Public Involvement (PPI) member Jeannine Joseph

Sickle cell patient & representative for research

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Dr Rachel Kesse-Adu

Consultant Haematologist, sickle cell specialist

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Dr Julia Kopeika

Consultant gynaecologist, subspecialist in reproductive medicine and surgery

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Professor Dame Elizabeth Nneka Anionwu

1st ever UK Sickle Cell & Thalassaemia Nurse & author of numerous titles, including her memoir ' Dreams from my Mother'.

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Specialist Nurse Kelly Nwankiti

Lead Nurse for Patient Blood Management

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Dr Nita Prasannan

Consultant Haematologist - special interest in sickle cell care in pregnancy

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Research Leads for TAPS2 – Hilary Thompson (RN/RM) & Vicky Robinson (RM)

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Dr Panicos Shangaris

Clinical lecturer, subspecialising in Maternal & Fetal Medicine

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Olushola Shoyemi

Advanced Nurse Practitioner in sickle cell care

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The Sickle Cell Society

Team lead Midwife Jackie Rice & specialist Midwife Aisling Fisher – Tower Team

Abbie Wickham

Highly Specialist Clinical Psychologist

Topics

  • What is sickle cell and overview of care
  • Medication and pain management
  • Psychological care for people with sickle cell
  • Sickle care nursing
  • Blood transfusions and safety
  • Stem cell transplants
  • Patient experience
  • Support organisations for Sickle Cell
  • Interview with Professor Dame Elizabeth Anionwu- the 1st UK sickle cell Nurse
  • Fertility in sickle cell and fertility preservation
  • Prenatal pre-implantation diagnosis
  • Antenatal haemoglobinopathy screening
  • Gene therapy
  • The ‘joint sickle cell antenatal clinic’ system
  • Caseload midwifery for women with sickle
  • Obstetric care for women with sickle
  • Neonatal and Paediatric sickle cell care
  • Current and potential future sickle cell research projects